Let’s be honest. I had never even remotely heard of this
thing before. Heck, the only part of the ear I knew about was the eardrum. When
the ENT called (the one before the one at OHSU…the second time at OHSU) and
said that this might be a diagnosis, obviously I went online and googled that
ish. As I’m reading about all the symptoms, I’m thinking in my head, “Yep,” “Oh,
that’s the technical name for that,” and “Wow, this sounds exactly like me.”
Here you go, folks. SSCD in a blonde, twenty-something’s words.
Let’s break it down, shall we?
Superior Semicircular Canal: As you can see in the photo
below, the semicircular canal is located in the inner ear. It is lined with
cilia (tiny ear hairs…gross, right?) and filled with a fluid called endolympth.
Every time the head moves, that fluid moves the cilia. The movements of the
cilia are communicated to the brain, making it a motion sensor of sorts. The
brain then knows how to keep the body balanced. The semicircular canal has
three (main) parts: horizontal, posterior, and superior canals, each of which
provides a separate sense of directional balance. The superior canal detects
head rotations on the anterior-posterior axis (up and down movements of the
head).
The ear. Duh.
Dehiscence: There are a number of different kinds of
dehiscence in the medical world. But here’s what it means in terms of SSCD: it
is a thinning or opening of the bone in the skull that covers the superior
semicircular canal. In my case…the bone is missing. I’ve tried to show it in the
photo below. The right side (labeled ‘normal’)…look below the ‘m’ in
normal…that’s what it should look like. The left side (labeled
‘dehiscence’)…look below the first ‘e’ in dehiscence. See the big black space?
That’s where the bone has eroded away. There isn’t really a clear answer as to
why the bone has eroded, but it has.
Inside my head...I know, really, who wants to be there?!?
Diagram of SSCD
About 17 years ago, a doctor by the name of Lloyd B. Minor
at Johns Hopkins University was doing his doctor thing. He found that eye
movements evoked by sound and pressure stimuli often align with the plane of
the superior canal (sorry, no blonde terminology for that one…that’s in the
works). He and his colleagues published information about the syndrome and
created a surgical procedure to correct the problem and relieve the symptoms. I
don’t know him personally, but I’m going to go ahead and call Dr. Minor my
homeboy.
The man that changed my life...Dr. Minor
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